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Latest Discussions

  • Posted in: Member Community

    Does anyone have any input on how to advise patients either who are considering starting elmiron or who already on elmiron? Get Outlook for iOS This e-mail may contain confidential or privileged information. If you are not the intended recipient, ...

  • Posted in: Member Community

    Quick Update - As a followup to my letter yesterday. As of the morning of October 2, we now have 618 survey responses to our Elmiron Eye Survey. 537 of whom have taken Elmiron. 326 (53.36%) report eye or retinal illnesses. 78% sought help from an ophthalmologist. ...

  • Posted in: Member Community

    I am writing to ask for your help in identifying interstitial cystitis patients who may also be struggling with eye disease. Researchers at the Emory Eye Center believe that they have identified a new eye disease, a pigmentary maculopathy, associated ...

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